Director, Registry Data Operations and Partner Delivery

The Director, Registry Data Operations and Partner Delivery oversees MDA's operational commitments to biopharmaceutical and technology partners, manages collaborations with researchers, and coordinates delivery across the neuroMuscular ObserVational Research (MOVR) Registry's technical workstreams. This senior role translates program priorities into operational plans, ensures data quality and compliance with participant consent, and facilitates working groups to advance neuromuscular disease research and care. The position serves as the primary liaison for the technology platform partner and manages contractual deliverables, timelines, and risk escalation.