Global Lead- Patient Advocacy –Rare Diseases

The Global Lead, Patient Advocacy – Rare Diseases at Ipsen drives the development and execution of global patient advocacy strategy across the Rare Diseases franchise, acting as the primary liaison between the company and patient communities. This newly created role shapes the patient advocacy model, builds long-term partnerships with global and regional advocacy organizations, and ensures patient perspectives inform business decisions. It collaborates across functions and regions to improve access, awareness, and patient outcomes.